Anna and Ella went for a tiny bike ride tonight after bathtime. Well, Ella actually kept riding long after Anna was too tired and went back to her room.
Anna is learning to take pills because tonight she threw up two doses of her pred - kind of a super duper really important medicine she Needs to have to fight the leukemia. The taste is just making her gag. She did quite well with the pills, ticked off beyond belief to take them, but she kept them down! She then promptly asked for more food. :) Go Anna!
X-ray today, I was correct; bowel obstruction, that everyone: nurses, drs, Sam, all wanted to quit treating is still there. Smaller, but still there.
We had great guests today, a mom from my PEPS group when Ella was a baby and her 6 1/2 year old came by - fantastic to have someone else here to speak with! Thank You!
I also got the official information that my old MOMS club from Spokane is dedicating this years' American Cancer Society Relay for Life to Anna. Totally made me cry, happy tears. We also had amazing information from some other incredibly loving Spokane friends that made me cry too, happy tears. Thank You! Plus, Ella and Anna's favorite cancer book, "Chemo to the Rescue," is from different Spokane friends.
BTW- we've been recommending that book to everyone, the doctors, Child Life, Social Worker...pretty much everyone agrees that it is great. Tonight Cori, our Fellow, was in talking to us about the biopsy results and Ella asked for that book - "They really do like that book, don't they." Sam and I feel like we should order copies for everybody. :)
Tonight after Anna's bath I pulled her hair back. She has major tangles and mess going on, it is consistently tangling because all the loose hairs are wrapping up and twining in with the still-attached hair. Seriously it looks like a bird's nest. I can't bring myself to make her sit while I comb it because it just melts off her head as I stroke through it. Anyway, I pulled her hair back and out of her face and as Sam was leaving he looked over to me and mouthed, "She's bald." Yes, parts of her are. She looks a lot like her Grandpa with her receded hairline ;) It isn't as noticeable when her hair is down and messy or when she's lying down, kind of easy to overlook. But I think I have to do something with it because the nurses have commented on it - I think they think I'm being negligent, in reality, I guess I'm just trying to have it last just a teeny bit longer.
Anna is settling into hospital life much better than her parents.
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