Anna had a good night - she slept pretty solid from midnight to 8:30, we were up about 2, 4, 6 and 8:30 to go potty. At either the 4 or 6 wake-up she said, "Sorry to keep waking you up Mom." How sweet is this girl?!?!?
Day4 means PEGaspargase (PEG) - this goes into her thigh muscle. The really cool part about being here is that nothing painful or 'mean' is really done in their room. The kids go to a treatment room so their room is a safe-zone.
Before they can give her the PEG she needs more platelets so we are starting that transfusion right now.
3 comments:
Awwww......
Sending P&PT and HUGS to you guys....
Oh Im so glad you did this. There were a couple times that I wanted to comment and thought to myself "Do I go back to the guest book and comment there?" Then I thought it was kept comment free so that when people are reading it they are getting your feedback and not the others so that it is easier to read.
Im so glad her numbers are dropping...very impressive. Are kids not amazing? Here she is going through so many different changes and she has several times been concerned for you. What a sweet girl you have Miss Brandi.
How are you holding up? You have to be exhausted. Are you and Sam tag teaming this? I do hope that you are able to take a break to refresh yourself. I know it would be hard to not be by her side 100% but I do so hope you are taking care of yourself as well...when you can. You have not asked for anything, is there nothing anyone from a distance can do?
We continue to pray for Miss Anna and your family. Your strength in this is amazing. Im so impressed with your ability to communicate to us all what is happening with Miss Anna, to be there for her and Ella and to adapt to your new normal.
We will continue to pray for the Comstock family, the Doctors, the nurses and hope to continue to hear good news. Love and miss you!
The Heltons
Hey, Brandi. A friend of mine just told be about carecalendar.org that helps families schedule the help they need...you might be interested in having a close friend spearhead this for you...so we can start bringing you meals and groceries, whatever you need. I know we are all so eager to help you! ;) Because we care and because we are moms like you...and can't imagine doing this alone! :) I will be by to visit as soon as I kick this cough, almost finished, I hope!
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