We are having a great time settling in - today is the first day the girls have been allowed together. Ella has been sick and has been in isolation in our room and bathroom since Friday.
Ella was working on her Valentines and Anna wanted to do Valentines also. I wasn't really prepared but she's pretty happy with what we came upwith, good thing Ella changed her mind at the last minute about what she wanted. She and I ran to Michaels to get the supplies for hers, Anna is happy with hers. It took the poor baby about ten minutes to write her name ten times. :( Now she is too tired and needs a rest after doing all that work. I feel so incredibly sad. Our poor precious girl that didn't know the meaning of being quiet or sitting still needs to rest after writing her name. It is such a slap in the face. Anna is such an amazing person though...truly. She is quite inspiring.
Tomorrow we are off for clinic visits and blood tests. If her numbers are good then we will begin the next phase of chemo on Tuesday. We are currently scheduled for chemo visits Tuesday-Saturday. I'm not yet sure about Sunday. I'm sure I can see the appeal for living at the Ronald McDonald House across the street.
It is wonderful having everyone home but not the same at all. I've slept in Ella's room, Ella's slept in our room, Anna sleeps in her bed, Sam sleeps on Anna's trundle. Currently our bedding is being washed - we have a new baby monitor (haven't used one of those in years!) and hopefully tonight everyone sleeps in his/her own bed.
Extremely stressful having Anna home. Keeping up with her feeding tube, the meds, the liquids, the output, the sleeping, the pain, the dizziness, the crankiness - is she eating too much, is she eating too little, is she sick, does she have a fever, should she sleep, should she be awake, is it okay that she's sleeping this long, should we wake her up, should we make her sleep, should we medicate her for her pain, nausea, intestines, dizziness...Endless, boundless questions without any clearcut answers. There is little about this situation that is concrete and it adds to my sense of unease.
Ella has actually skipped skiing both Saturday and Sunday this week because she's not feeling well enough to go, although Sam and I both suspect that she is fine today, and is choosing not to attend.
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