Day8 Results:
It took *forever* to get Anna's results back from her biopsy yesterday. It was about 5:30 this afternoon.
So, evidently what both Sam and I remembered is not what we were told today. Anna's ARNP called us and sounded very excited on the voice mail, but it didn't match what we remembered being told. I paged her and she called us back on her drive home.
Anna's biopsy result is 7.5% of her bone marrow in cancerous - 92.5% is not-cancerous! Anna is in a research study and Karen (the ARNP) told us that they haven't yet met the date for deciding RER or SER - both Sam and I remember Dr. Cori telling us that would be decided on Day8 - Karen says that isn't so. She says that it is decided on Day15 for study participants. So, next Thursday Anna will have another biopsy along with her chemo...not terribly fun and then we get to look forward to another wait for test results. Karen did say that she believes the pathologist did an extra special sensitive test rather than their usual test - because she doesn't typically get results in 1/2 percents and the special sensitive test (MRD) takes about 24 hours for returns.
Karen says to be classified as RER Anna needs to be less than 5% on Day15 and again less than 0.1% on Day29. We will wait and see - I believe her, but Sam and I also remember what the dr. told us... we will take this as great news today! That's what Karen said, "That's great news!"
Lab work and probable transfusion on Sunday - keep hoping there is no fever so we don't have to go back to the hospital!
Today was my first day at school since more people know. I wasn't looking forward to it, but it wasn't as bad as I anticipated. I got a lot of hugs and a lot of support and offers of help - all wonderful things. I met with Ella's 1st grade teacher and her Kindergarten teacher - they are so sweet and amazing. We have delightful teachers at school! That was the hardest part of today - the kindergarten teacher had a baby in October and is so full of emotion, it was sad but sweet - we love her!
Ella and I had some serious conversation tonight about what this means for Anna and what it means for Anna's near future. Ella mentioned staying up late and Anna says, "Don't say that, it makes me sad because I can't stay up late. I have to go to school tomorrow." :( I just can't tell her she won't be going back. Most of the time she's been too tired and out of it to even consider school but tonight Ms. Terri came over with care packages from the pre-school families - sob-inducing!!! Anna actually got out of bed and came and saw Ms. Terri, not sure if she actually spoke with her, but they did get a chance to see each other. Ella's class made cards for Anna with Ella/Anna word searches inside. I can't even begin to tell about all the wonderful things that came into our house today.
I spoke with a LOT of people on the phone - it was kind of a catch-up day, sad, but good sad. It is getting much easier to talk about and say the words - but every now and then Sam and I will just look at each other and one of us is like, "Shit, our kid has cancer!" Most of the time we are so focused on getting through the day and moving forward that we don't have time to think about it. Trust me, no one wants to be in on the conversations when we go to bed at night. Tee Hee, that sounds much more fun and exciting than it actually is. :)
Tomorrow I am leaving the house, hopefully to go run some errands and leave the house for more than the hospital! Grandpa is taking Ella skiing this weekend and Sam and I are going to try and have some social contact that does not involve doctors and nurses.
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